Biobanks

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  • Publisher : Routledge
  • Release : 28 April 2008
  • ISBN : 9781134090266
  • Page : 241 pages
  • Rating : 4.5/5 from 103 voters

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In recent years, a number of large population-based biobanks – genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy – have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated. Biobanks: Governance in Comparative Perspective is the first book to explore the political and governance implications of biobanks in Europe, the United States, Asia, and Australia. This book explores: the interrelated conditions needed for a biobank to be created and to exist the rise of the new bio-economy the redefinition of citizenship accompanying national biobank developments This groundbreaking book makes clear that biobanks are a phenomenon that cannot be disconnected from considerations of power, politics, and the reshaping of current practices in governance. It will be a valuable read for scholars and students of genetics, bioethics, risk, public health and the sociology of health and illness.

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Biobanks

Biobanks
  • Author : Herbert Gottweis,Alan Petersen
  • Publisher : Routledge
  • Release Date : 2008-04-28
  • ISBN : 9781134090266
GET THIS BOOKBiobanks

In recent years, a number of large population-based biobanks – genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy – have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated. Biobanks: Governance in Comparative Perspective is the first book to explore the political and

Reciprocity in Population Biobanks

Reciprocity in Population Biobanks
  • Author : Ma’n H. Zawati
  • Publisher : Academic Press
  • Release Date : 2021-09-22
  • ISBN : 9780323913485
GET THIS BOOKReciprocity in Population Biobanks

Reciprocity in Population Biobanks: Relational Autonomy and the Duty to Inform in the Genomic Era begins by discussing how current judicial interpretation keeps standard of disclosure at the core of genomic research. The book then outlines multiple limitations individualistic autonomy faces in the context of gene and population biobanks, including an analysis of the complexities of benefit considerations in the research setting. Second, the book explores how individualistic autonomy fails to acknowledge the multilateral relationships implicated in genomic research, including

The Ethics of Research Biobanking

The Ethics of Research Biobanking
  • Author : Jan Helge Solbakk,Soren Holm,B. Hofmann
  • Publisher : Springer Science & Business Media
  • Release Date : 2009-07-31
  • ISBN : 9780387938721
GET THIS BOOKThe Ethics of Research Biobanking

Biobanking, i.e. storage of biological samples or data emerging from such samples for diagnostic, therapeutic or research purposes, has been going on for decades. However, it is only since the mid 1990s that these activities have become the subject of considerable public attention, concern and debate. This shift in climate is due to several factors. The purpose of this book is to investigate some of the ethical, legal and social challenges raised by research biobanking in its different modern

Biobanks

Biobanks
  • Author : Herbert Gottweis,Alan Petersen
  • Publisher : Routledge
  • Release Date : 2008-04-28
  • ISBN : 9781134090273
GET THIS BOOKBiobanks

In recent years, a number of large population-based biobanks – genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy – have been set up in order to study the interface between disease, and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated. Biobanks: Governance in Comparative Perspective is the first book to explore the political and

GDPR and Biobanking

GDPR and Biobanking
  • Author : Jane Reichel,Santa Slokenberga,Olga Tzortzatou,Springer Nature
  • Publisher : Springer Nature
  • Release Date : 2021
  • ISBN : 9783030493882
GET THIS BOOKGDPR and Biobanking

Part I Setting the scene -- Introduction: Individual rights, the public interest and biobank research 4000 (8) -- Genetic data and privacy protection -- Part II GDPR and European responses -- Biobank governance and the impact of the GDPR on the regulation of biobank research -- Controller' and processor's responsibilities in biobank research under GDPR -- Individual rights in biobank research under GDPR -- Safeguards and derogations relating to processing for archiving purposes in the scientific purposes: Article 89 analysis for biobank research

Comparative Issues in the Governance of Research Biobanks

Comparative Issues in the Governance of Research Biobanks
  • Author : Giovanni Pascuzzi,Umberto Izzo,Matteo Macilotti
  • Publisher : Springer Science & Business Media
  • Release Date : 2013-01-30
  • ISBN : 9783642331169
GET THIS BOOKComparative Issues in the Governance of Research Biobanks

In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor’s “informed consent”

Biobanks as Essential Tools for Translational Research: The Belgian Landscape

Biobanks as Essential Tools for Translational Research: The Belgian Landscape
  • Author : Sofie J. S. Bekaert,Annelies Debucquoy,Veronique T’Joen,Laurent Georges Dollé,Loes Linsen
  • Publisher : Frontiers Media SA
  • Release Date : 2020-09-17
  • ISBN : 9782889660162
GET THIS BOOKBiobanks as Essential Tools for Translational Research: The Belgian Landscape

This eBook is a collection of articles from a Frontiers Research Topic. Frontiers Research Topics are very popular trademarks of the Frontiers Journals Series: they are collections of at least ten articles, all centered on a particular subject. With their unique mix of varied contributions from Original Research to Review Articles, Frontiers Research Topics unify the most influential researchers, the latest key findings and historical advances in a hot research area! Find out more on how to host your own

Governing Intellectual Property Rights Within Publicly Funded Biobanks

Governing Intellectual Property Rights Within Publicly Funded Biobanks
  • Author : Rajam Neethu
  • Publisher : Kluwer Law International B.V.
  • Release Date : 2019-06-21
  • ISBN : 9789403506227
GET THIS BOOKGoverning Intellectual Property Rights Within Publicly Funded Biobanks

Governing Intellectual Property Rights Within Publicly Funded Biobanks R. Neethu The boom in biobanks and health databases as research infrastructures have evoked various legal and ethical debates. Since then numerous new developments have emerged such as digitalization, big-data research and artificial intelligence which has important implications for biobank-based research and collaborations. This new paradigm offers new legal challenges for commercial involvement particularly within a publicly funded setting. In this innovative book, the author shows that securing maximum social benefit out

Ethical Issues in Governing Biobanks

Ethical Issues in Governing Biobanks
  • Author : Nikola Biller-Andorno,Alexander M. Capron
  • Publisher : Routledge
  • Release Date : 2016-05-13
  • ISBN : 9781317141488
GET THIS BOOKEthical Issues in Governing Biobanks

Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. Ethicists from the Department of Ethics, Trade, Human Rights and Health Law (ETH) of the

Biobanking in the 21st Century

Biobanking in the 21st Century
  • Author : Feridoun Karimi-Busheri
  • Publisher : Springer
  • Release Date : 2015-09-29
  • ISBN : 9783319205793
GET THIS BOOKBiobanking in the 21st Century

Biobanking, an emerging field supported by academia, industry and health administrators alike, is distinctly different today from the practice that once defined it. The science of Biobanking, which initially involved simply storing blood or tissue samples in a freezer, is now a highly sophisticated field of research, and expected to grow exponentially over the next decade or two. This book aims to serve the purpose of further enriching the available literature on Biobanking, by offering unique and more useful collection

Protecting Genetic Privacy in Biobanking Through Data Protection Law

Protecting Genetic Privacy in Biobanking Through Data Protection Law
  • Author : Dara Hallinan
  • Publisher : Unknown
  • Release Date : 2021-03
  • ISBN : 9780192896476
GET THIS BOOKProtecting Genetic Privacy in Biobanking Through Data Protection Law

Hallinan argues that the substantive framework presented by the GDPR offers an admirable base-line level of protection for the range of genetic privacy rights engaged by biobanking.

Ethics, Law and Governance of Biobanking

Ethics, Law and Governance of Biobanking
  • Author : Deborah Mascalzoni
  • Publisher : Springer
  • Release Date : 2015-01-22
  • ISBN : 9789401795739
GET THIS BOOKEthics, Law and Governance of Biobanking

Biobank research and genomic information are changing the way we look at health and medicine. Genomics challenges our values and has always been controversial and difficult to regulate. In the future lies the promise of tailored medical treatments and pharmacogenomics but the borders between medical research and clinical practice are becoming blurred. We see sequencing platforms for research that can have diagnostic value for patients. Clinical applications and research have been kept separate, but the blurring lines challenges existing regulations

Biobanking of Human Biospecimens

Biobanking of Human Biospecimens
  • Author : Pierre Hainaut,Jim Vaught,Kurt Zatloukal,Markus Pasterk
  • Publisher : Springer
  • Release Date : 2017-06-06
  • ISBN : 9783319551203
GET THIS BOOKBiobanking of Human Biospecimens

This volume is the first comprehensive text on human biobanking, authored by scientists and regulatory officers who have led the field over the past 10 years. It covers biobanking issues and its importance in advancing the field of research in cancer, cardiovascular, metabolic, and other diseases. Biobanks of human specimens have become the cornerstone for research on human health that harnesses the power of “omics” technologies to identify biomarkers for disease susceptibility. Biobanks are an essential component of the development of

Advances in Biobanking Practice Through Public and Private Collaborations

Advances in Biobanking Practice Through Public and Private Collaborations
  • Author : Elena Salvaterra ,Julie Corfield
  • Publisher : Bentham Science Publishers
  • Release Date : 2017-07-10
  • ISBN : 9781681085104
GET THIS BOOKAdvances in Biobanking Practice Through Public and Private Collaborations

Advances in Biobanking Practice Through Public and Private Collaborations presents an analysis of methods and current models of partnership between public and private organizations designed to improve biobanking practices in European countries. Chapters describe the state-of-the-art of public-private collaborations in biobanking on a global scale, innovative approaches to public-private partnership the role of a quality management system in biobanking collaborations, quality standard criteria specifically shaped for tumor biobanks, theoretical and practical access conditions to biobanks, the general legal framework governing

Principles and Practice in Biobank Governance

Principles and Practice in Biobank Governance
  • Author : Mark Stranger
  • Publisher : Routledge
  • Release Date : 2016-04-15
  • ISBN : 9781317075882
GET THIS BOOKPrinciples and Practice in Biobank Governance

Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges.